Hey everyone!
Just a heads up, this medical blog is protected by copyright. If you wish to use my images, or my story you must contact me and ask for my permission. This has become a huge issue recently with my photograph being stolen and used on a medical site that is full of inaccurate information and is not even related to my SJS story.
I love that people use this to help others, and share it with other survivors, that is great! But it is not great to see my photographs used on a site with inaccurate information.
What I post on this blog is my story, my opinion, my journey to recovery. It is not to be used for medical advice, you should ALWAYS consult with your doctor. I am here to give my experience and share my extensive SJS knowledge with others. Not to give medical advice.
Thank you for your understanding and respecting my story as a survivor of this horrible condition.
Christine
Hello!! I just discovered you, your story, your blog, and I am captivated. Though hard (understatement), with the struggle of reconciling the unknowns whilst trying to understand what we may never understand this side of Heaven, and in turn learning to live with these new normals, I must say how strong and brave you are; and how blessed you are with your family. I was moved in reading your sister's account 1 year later. But the blog stops at 2015... please update us. How are you doing?? I am not a SJS survivor, but I do have at least 4 autoimmune conditions (I believe "pan-positive" is what they labeled me), that started in Feb 2013, that I am (still) learning to live with, and it's an encouragement to see others with chronic debilitating autoimmune conditions not just survive, but thrive. I am praying your ivig infusions worked. Blessings to you on this 4th of July!
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