I am clearly not very good at this blog thing. I have not given an update on here for a long time. I will try to be better about this! Since the last time I blogged medically not much has changed except I am totally off my pain meds. Which is pretty exciting. I just decided the last week that enough was enough I want my life back, and I weaned myself off of them with the help of my mom. It was not easy they are right about how addictive they feel to your body but I want to be able to drive, and have a glass of wine with my friends, and take a step closer to independence so I used that to be able to stop. The pain doctors were really impressed so that was pretty cool, and they said they are pretty much done with me unless the pain in all of my joints does not go away. They recommended I “urgently” see a rheumatologist because all of my joints hurt. Like down to my knuckles and toes all of them hurt. So I am working on that currently. As far as other things go I think I have caught a stomach bug, I have been really sick all day starting last night. But hey, on the bright side I walked around a store today without my crutches!!! I was also out in the sun without it burning to the point of tears! Two good things outweigh the bad today and each day I am getting stronger and stronger. Backing up though, on Wednesday I went to my amazing aunts house for her birthday where we all had dinner and cake together. My Dad drove all the way down here for the night Monday to take me to my doctor’s appointments Tuesday (did I ever mention how amazing my parents are?) which was so fun. We spent the day together and went to the grocery store. Also, when I was at my appointments this week I used my crutches walking all around the hospital which is a very long trek. So that was another accomplishment. Then Thursday I saw the pain people and that leads us to today where I walked without my crutches, got a stomach bug, and melted in this ridiculous heat. That is all I have to report right now. I will try to get better about keeping this current!