Christine came home after lunch today!!! She and Mom came by my house on their way home to pick up a few of her things. She was surprised to figure out how much the sun HURT her skin. She knows she is supposed to stay covered, but even her exposed calves and forearms were hurting, she said it felt like acid on her skin even though she only took a few steps from the car to the house. When she went back out to the house we wrapped her in a sheet and used an umbrella to block the sun. She has a lot of long sleeve SPF clothing (and a hat!) on order so she will be more comfortable when outside.
She is all set up in Andover, with oxygen and a nebulizer for nights and breathing, and with all of her medications. There were a few medication snafus because the hospital forgot to write the prescription for a few things (like the nebulizer meds and her magic mouthwash). Tommy had to take multiple trips to CVS after multiple calls to the doctor to try to get it all sorted out. She will be sleeping on the second floor, but its just a few steps up because its kind of a split level design. She has extra pillows for the bed so she can prop her head and feet up like she was doing in the hospital. For during the day they set up a comfy recliner for her on the "porch," the fully finished and enclosed (normal house not outside living space) eating and sitting area where people spend most of their time at my grandparents house.
For dinner Mom and Christine got all dressed up to go next door to Dan and Purvi's house, where they were having a "hena party" for Purvi's sister who will be getting married this weekend! Christine wore real clothes for the first time and said to tell you all that she felt like a million bucks.
I advised against it, but Christine had her heart set on having hena done. Luckily, she chose to have it on her feet where the rash was the most minimal.
We'll let you know tomorrow how the night goes!
