Mothers Day 2013

May 12, 2013 - Happy Mothers Day 2013!

I have not posted on Christine's blog as Caroline has been doing an amazing job, with Christine's help. My sister has also posted once and her post also was great. I have wanted to post several times, but, have just not been able to do so. This has been such an emotional exhausting month that I have just been unable to sit and write.

I have worried so much about Christine's sister Caroline as she has taken on such a huge responsibility for Christine and her well being. Caroline's fiance David has also been such a solid source of support. It sometimes seem to me that this has just been more than they also should have had to bear as well.

Christine's dad, step dad and my husband Tommy have been there unfaltering in their support and there are no words that I can say to explain how much this has helped get us through this tough time.

I really cannot explain what life has been like since April 6, 2013. The first few days of Christine's illness were difficult enough. If I had had any idea of what was to come I would have never believed it. I was so frustrated with what was happening with Christine and I kept telling her that she needed to "find some way to get to the bottom of it". We all had dinner on Sunday night April 7th and Christine thought she had pink eye and a yeast infection. Little did we know what was brewing in her young, strong body! I cannot explain how it feels to be a mother of an SJS victim, and there is no way to explain how hard is has been to see my young, strong daughter suffer as she has.

Christine has been amazing through all of this. She has been dealt a very hard blow, but, she is young and strong and she will, as my husband continually says, "prevail". We have no idea what she will face in the short term or the long term, but, she is positive and strong and I believe that she will be fine.

It is really important for me to explain how much it means to me and to Christine that as awful as this illness has been, how much her ENTIRE family has rallied and has been there for both her and me. Her aunts, uncles, cousins, step-dads, step-mom, sisters, brothers, sister-in-law, co-workers, nurses, doctors and her grandparents have been there day in and day out. EVERYONE has been there for her. Christine loves her family and her friends and is such a social, happy, outgoing young women. She has been through so much and it is just amazing to me that she has been able to optimistic at all at times. She still makes me laugh, cry and look at so many things from "a different lens". She never ceases to amaze me.She has remained optimistic and positive despite all that she has been through.

We still have lost of worries and concerns but, she is so much better. I cannot thank family, friends, co-workers, doctors and others enough for the generosity, caring and support. Christine has beaten so many odds and she is so lucky.

This has been a Mothers Day like no other. Christine arranged for all of us to be at Mass General for lunch and, as I sat there watching her and her family I realized how lucky I am to have such an amazing family and such amazing children. Christine will recover fully which such love and support, there is no way she could not. It may be a long road, but, she will get there and, she will be that much better when this is all over. She so much wants to be a nurse, now she really will be ready. I know that she will be someday fulfill her dreams and that this experience will only make her be better than ever!

Thank you Christine for an awesome Mothers Day!