From Christine: Emotionally today was another hard day, but I had some great visitors to help me get through it.
Since the last post, Christine has had a visit from the PCP on her case, who seemed displeased with the change in antibiotics and indicated that Christine could be here into next week (i.e., more than one more week). We weren't sure why she wasn't up to speed on the decisions by Derm and internal medicine. It sounds like they will taper her steroids more slowly this time to hopefully ensure that her body's autoimmune response is really finished.
Christine had quite a few visitors this afternoon, starting with Kimmy who washed her feet, cut her toe nails, removed her old nail polish, and painted them again with a pretty teal color (see the picture below). Christine also had several work friends stop by, one of whom brought mango frozen yogurt and another of whom brought an amazing care package filled with a homemade "birch box" (a box of beauty care samples that Christine used to receive in the mail), a funny card, a pair of really soft baggy pajamas to wear when her skin is healed, and a large fuzzy blanket. Dan, Purvi, and our three cousins came in for a bit armed with McDonalds french fries, and Dad was here most of the day with Mom and Tommy. As I said earlier, I am on night duty tonight and Christine is all ready for bed and tucked in. She might have one more visitor from work, and she has a couple more medicines to take before we finally go to sleep. David came in with me and got takeout for the three of us at Havard Gardens, which was fun. We also all munched on some home made cookie dough for dessert.
I think that's it for today's updates! We expect to see Aunt Cindy tomorrow morning and Grandpa George and Linda at lunch time. Who knows who else might stop in! Good night for now. Let's send good thoughts to Christine's body to heal up and stop the progression of this unexpected, slightly worrisome, and perplexing wave.
See you in the AM. I will be there as early as the traffic allows!
ReplyDeleteChristine, Caroline, Ami, and others, We are staying posted and hoping today's a better day. Best wishes.
ReplyDeleteGrace and Christine Bengtson
I hope today is a better day Christine! I'll check back later. Your in my thoughts.
ReplyDeleteKelly