Tuesday, April 16, 2013

April 16, 3pm

From Christine: Thank you for the visitors and for the flowers and gifts. I'm in a lot of pain, and feeling agitated. But having the amazing nurses and friends and family visitors is really helping. 

Christine might be feeling a touch better today than she was yesterday. She has had a little bit of cream of wheat, a sip of milkshake, and a bite of soft grilled cheese to eat. Two friends from work stopped by to visit, and Aunt Cindy spent quite awhile sitting with her. Christine received a beautiful flower and chocolate delivery from the "Allen cousins." She repeatedly says how much it means to her to have so much support.

Dermatology has taken over the direct care of her wounds - they are coming in twice a day to check and change all of her Vaseline bandages. This has given Christine some comfort because it means that dermatology is able to track her head to toe progress first hand, and it also means they can better help with her comfort. For example, they have been draining the largest of her blisters, which has made getting in and out of bed for the bathroom much easier for Christine.

Opthomology was here last night to check her eyes - the conjunctive eye is sloughing skin the way the rest of her body is. To prevent scarring they have put a Prokera lens in one eye (containing an amniotic membrane) and a very large bandage style contact in the other. Her O2 saturation is much better today, and she is able to get herself in and out of bed with just minimal assistance to get to and from the bathroom. The doctors are slowly reducing her steroid dosage as the inflammation stage of this condition passes.

7 comments:

  1. Christine - I'm so glad to hear you're a little bit better today - that's a small step in the right direction. I'm leaving from work in about 15 minutes to come see you!

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  2. Awesome job Linus !!Good thing Christine has a "big" sister.

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  3. One more day behind you. Hang in there Christine...

    Love You Jackie

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  4. We are all rooting for you Christine! Let me know if silly internet articles are helpful. I just found one called "for everyone who believes 'She's all that' gives unrealistic views about prom". We can make Caroline give you a dramatic reading :)

    Here's hoping for continued improvement.

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  5. You are the strongest person I have ever met! I can't get over how you are handling all this! Love you baby girl!

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  6. Hi Christine,
    We are glad to read you may be feeling less uncomfortable. We are sending warm thoughts and prayers your way, and we plan to visit you Thursday.

    Thanks for starting this blog, Caroline.

    Love, Grandpa George and Linda

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  7. Our thoughts are following you every step of the way, Christine. Hang in there. So many people thinking of you right now. -Karen (Matlin)

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